Wednesday, September 5, 2012

Update

The last couple of weeks have brought more questions than answers. We've been praying for answers regarding Leila and whether or not a shunt is needed.

Leila's ventricles are definitely larger than they should be. The good news is that her ventricles have not gotten any larger since we left the hospital. She is also not displaying any of the warning signs that her enlarged ventricles are causing her problems. The thing that worries our now former neurosurgeon is her head size. But, here are some things to consider...Leila has doubled her weight since we left the hospital around 10 weeks ago. She has grown so fast! Is he taking into consideration that her length and weight have also crossed percentiles? No. Does he know if her head size is because of her ventricles or because she is growing so much so fast? No. Has he been keeping an accurate record of her head circumference measurements? No. Is he sure that she needs a shunt? No. Is it urgent? No. But if it was up to him she would already have it.

Anyway, all that to say that at the last appointment with our neurosurgeon things just weren't adding up. He couldn't say for sure that a shunt is what she needs but he wanted to do the surgery that week. He also did something that I won't rehash here but it made us not trust him at all. We decided since he said it definitely wasn't urgent that we would go for a second opinion. Soon, we will see a neurosurgeon at Vanderbilt Children's Hospital and hopefully have the answers we need. I know we've been praying about this for months but please continue to lift Leila and us up regarding this situation.
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Both babies are doing GREAT! All I have to do is give them a hand to push their feet against and they'll crawl across the floor. They are both holding their heads up a lot better. Both can raise all the way up to their elbows when on their bellies. They are also both so inquisitive. They study people's faces and the things around them. They seem so fascinated by lights, sounds, and...the t.v....

Logan is a little character. He is the comic relief of the family. I'm not sure where he gets his personality. He's always smiling and wanting to play. He likes to try to get out of having to take all of his bottle by stopping in the middle and smiling and playing. I have to admit, sometimes it works because he is just so darn cute when he does it...He is also starting to try and grab things and he tries to mimic you when you stick your tongue out at him or make a facial expression.

Leila is still our little princess. She is also starting to smile at us more and want to play more. I LOVE seeing them smile! They both amaze me every single day.


Crabby Pants

Sweet little feet with Momma's long toes :)

Sweet boy

Sweet girl

A little blurry but it gives you an idea of how good she's pushing up!

So proud of her!
We're in trouble...This is how I put Logan to bed last night...

And this is how I found him this morning! He can officially roll all the way over!






2 comments:

  1. Awww! Love the pics! thank you for sharing :)
    Our family continues to lift up your family and especially little Leila in prayer. We pray for the new neuro doctor as well.
    Rolling & Crawling!! Fun times are ahead, my friend! :D

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  2. I'm so proud of you both for questioning and not just taking the word of the doctor just because he is a doctor.

    The pics are wonderful and it is great to see how they have both grown. And yes I do believe you are in trouble with Logan. It won't be long before he is doing all sorts of things!

    I will continue to pray for Leila and that the new neuro has some definite answers.

    Love you all!
    Auntie P

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